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NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients that attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.
Welcome Reception 7:00 – 9:00 pm
Light Buffet Served
Breakfast/Registration 8:00 – 9:00 am
NORD Welcome 9:00 – 9:30 am
Expert Physician Presentation 9:30 – 11:30 am
Check out of Hotel Room (if applicable) 11:30—11:45 am
Lunch 11:45 am—12:30 pm
Session with Licensed Clinical Social Worker 12:30 – 1:45 pm
Patient Organization Presentation 1:45 – 2:00 pm
OneSource Presentation 2:00—2:15 pm
Patient Empowerment Discussion/Meeting Close 2:15 – 2:30 pm
*Agenda subject to change at NORD’s discretion.