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Requests for Proposals

The NORD Research Grant Program provides seed-money grants to academic scientists for scientific and/or clinical research. The hope is that these studies will ultimately lead to new diagnostics, treatments, and/or cures for rare diseases. NORD’s program provides grants for the study of diseases for which there are few other sources of funding. Grants provided through the NORD program are made possible by donations from individuals and organizations to restricted research funds at NORD.


NORD Research Grants

*NORD has reopened the call to submit abstracts and letters of intent for the following grants. The deadline is ongoing and all U.S. and international researchers interested in studying these diseases are encouraged to consider applying. For questions related to these grants, email research@rarediseases.org.*

  • Cat Eye Syndrome – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Cat Eye Syndrome. Download RFP.
  • Malonic Aciduria – One (1) grant of up to $50,000 for scientific and/or clinical research studies related to Malonic Aciduria. Download RFP.
  • Post-Orgasmic Illness Syndrome – One (1) grant of up to $31,000 for scientific and/or clinical research studies related to Post-Orgasmic Illness Syndrome (POIS). Download RFP.

Additional Funding

NORD’s member organizations are invited to share information on this page about their research funding opportunities. Researchers who have questions about programs listed below should contact the organization sponsoring the RFP. In order to have information posted on this page, please email membership@rarediseases.org

American Partnership for Eosinophilic Disorders (APFED)
APFED is now accepting applications for three 2018 HOPE Pilot Grants. APFED’s HOPE Pilot Grant program was established to allow investigators from a variety of disciplines to initiate new projects relevant to eosinophil-associated diseases (EADs).
More information here.

Hydrocephalus Association
The Hydrocephalus Association is soliciting applications for research on postinfectious and posthemorrhagic hydrocephalus. The goal of this initiative is to provide seed funding for bold and innovative research with the potential to transform the field of hydrocephalus through the understanding of disease mechanisms and the development of novel therapies and treatment approaches. Please note, you need to be a HANDS member to apply. Membership is free. Sign up here.
More information here.

Hyper IgM Foundation
The Hyper IgM Foundation has announced the availability of seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome.  The intent of these grants is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Grant applications will be considered twice per year with submission deadlines of April 30th, 2017 and September 30th, 2017.
More information here.

Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
LGDA has made available applications for funding for the study of Lymphangiomatosis and Gorham’s Disease. The period of award and level of funding is unique to each funded project, and depends wholly on the scope and requirements of each approach.
More information here.

The MDS Foundation, Inc.
The MDS Foundation, Inc.’s Young Investigator Grant provides an investigator, aged 40 years or less, the opportunity to initiate, continue or complete a project that focuses on either basic or clinical management into the causation, epidemiology, molecular biology, cytogenetics, morphology, prognosis and treatment of the Myelodysplastic Syndromes.
More information here.

The National PKU Alliance
The National PKU Alliance announced its 2018 Call for Research Proposals and Fellowships to continue its mission and advance PKU research. Full proposals should be received no later than November 1, 2017. Award notices will be given by January 31, 2018 with funding to begin on March 1, 2018.
More information here.

Neuroendocrine Tumor Research Foundation
NETRF has announced the availability of 2017 grant funding for the study of neuroendocrine tumors. The organization is inviting competitive Letters of Intent (LOIs) that outline research with the potential to transform our understanding of NETs and/or lead to improved treatments and diagnostics for patients.
More information here.

TagetCancer Foundation
TargetCancer Foundation is announcing their first round of rare cancer research grant funding for 2016: $200,000 in new grants supporting innovative rare cancer research, as well as a new program supporting patients facing cholangiocarcinoma.
More information here.

Requests for Proposals

Medical Advisors

All medical decisions guiding the NORD Research Grant Program are made by NORD’s Scientific and Medical Advisory Committee. View the committee >