Scroll
To Top

About the Corporate Council

The NORD Corporate Council is comprised of a select group of leading companies committed to helping people with rare diseases. Members include pharmaceutical, biotech and medical device companies that are developing or marketing therapeutic or diagnostic products, as well as companies that are engaged in other aspects of healthcare for the rare disease/orphan product community such as specialty pharmacies, distributors, contract research organizations, integrated healthcare systems and consulting firms.

Membership on the Council demonstrates a commitment to the identification, diagnosis, treatment and cure of rare disorders through programs of education, advocacy, research and service. The Council provides unique opportunities for companies that constitute NORD’s members, but also with top scientific, clinical and policy experts and leaders in the worldwide rare disease community.

View the list of current members  >

Membership Benefits

Annual membership benefits for manufacturers at the pre-clinical, clinical development and product levels include:

  • Complimentary participation in two Corporate Council Member meetings each year.
  • Invitations to participate in monthly policy calls to hear from NORD’s policy staff about initiatives being discussed on the Hill and learn about NORD’s policy positions and priorities.
  • Invitations to participate in quarterly calls on a variety of clinical or market access topics.
  • Timely news alerts highlighting important issues impacting rare diseases and orphan drugs, biologics, and devices.
  • Access to NORD’s Senior staff and leaders in the rare disease community.
  • Networking opportunities with other Council members and leaders in health-related industries.
  • Special recognition in NORD public outreach including the NORD newsletter, website, and Council materials.

Annual membership benefits for the business member level include:

  • Complimentary participation in two Corporate Council Member meetings each year. 
  • Invitations to participate in quarterly calls on a variety of clinical or market access topics.
  • Thought leadership opportunities to present case studies or tailored educational content on NORD’s quarterly Corporate Council calls and/or during in-person meetings
  • Access to NORD’s Senior staff and leaders in the rare disease community.
  • Timely news alerts highlighting important issues impacting rare diseases and orphan drugs, biologics and devices.
  • Networking opportunities with other Council members and leaders in health-related industries
  • Special recognition in NORD public outreach including the NORD newsletter, website, and Council materials

Membership Levels

Pre-Clinical Member
Companies that currently have one or more orphan product candidates in pre-clinical research.
Annual Contribution: $5,000

Clinical Development Member
Companies that currently are not marketing but are developing an orphan product candidates in clinical trials.
Annual Contribution: $10,000

Corporate Product Member
Companies that currently market one or more orphan drugs or devices
Annual Contribution: $25,000

Business Member
Companies that are essential partners to pre-clinical, clinical and product members
Annual Contribution: $20,000

Membership terms run January – December and dues are pro-rated quarterly for those who join during the year.

Corporate Council Resources

icon

Corporate Council Meetings

NORD sponsors two annual meetings and on-going teleconferences. The major areas of focus are policy and regulation, patient access and reimbursement, and research and intelligence. View events >

icon

COUNCIL CODE OF CONDUCT

All companies who join the Council must adhere to the Code of Conduct outlining NORD’s interactions with its corporate members.  More >

icon

Additional information

For more information about the Corporate Council, email council@rarediseases.org.