The NORD Corporate Council is comprised of a select group of leading companies committed to helping people with rare diseases. Members include pharmaceutical, biotech and medical device companies that are developing or marketing therapeutic or diagnostic products, as well as companies that are engaged in other aspects of healthcare for the rare disease/orphan product community such as specialty pharmacies, distributors, contract research organizations, integrated healthcare systems and consulting firms.
Membership on the Council demonstrates a commitment to the identification, diagnosis, treatment and cure of rare disorders through programs of education, advocacy, research and service. The Council provides unique opportunities for companies that constitute NORD’s members, but also with top scientific, clinical and policy experts and leaders in the worldwide rare disease community.
Annual membership benefits for manufacturers at the pre-clinical, clinical development and product levels include:
Annual membership benefits for the business member level include:
Companies that currently have one or more orphan product candidates in pre-clinical research.
Annual Contribution: $5,000
Clinical Development Member
Companies that currently are not marketing but are developing an orphan product candidates in clinical trials.
Annual Contribution: $10,000
Corporate Product Member
Companies that currently market one or more orphan drugs or devices
Annual Contribution: $25,000
Companies that are essential partners to pre-clinical, clinical and product members
Annual Contribution: $20,000
Membership terms run January – December and dues are pro-rated quarterly for those who join during the year.
NORD sponsors two annual meetings and on-going teleconferences. The major areas of focus are policy and regulation, patient access and reimbursement, and research and intelligence. View events >
All companies who join the Council must adhere to the Code of Conduct outlining NORD’s interactions with its corporate members. More >
For more information about the Corporate Council, email email@example.com.