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Regional Meetings

NORD’s regional membership meetings are designed to help you meet, network, learn and share best practices with leaders of other patient organizations in your geographic area.  They provide capacity building training and community updates, encourage knowledge sharing, and foster collaboration that can continue throughout the year. These meetings are an opportunity to create meaningful connections and facilitate relationships to benefit all within our network.  View upcoming events >



Member group

Upcoming Meeting Dates & Locations

NORD Members-Only New York City Luncheon 
NORD is hosting a free meeting that will give NYC-area members the opportunity to connect, learn, and share with other patient organization leaders!

When: Wednesday, August 9, 11:00 a.m. – 3:00 p.m.
Where: Morton’s The Steakhouse, New York City, NY

2017 Rare Diseases and Orphan Products Breakthrough Summit 
As major changes to the nation’s healthcare system are debated, the NORD Summit will provide a unique opportunity to hear from the experts and join the conversation on issues of unprecedented importance.

Before the summit, a special members-only meeting will be hosted to provide the opportunity to network with other leaders of rare disease patient advocacy organizations. Scholarship applications are also available for member organizations of NORD.

When: Members Only Meeting: Sunday, October 15 (more information coming soon)
Summit: Monday, October 16-Tuesday, October 17
Where: Marriott Wardman Park, Washington, D.C.


Upcoming Meeting Dates & Locations

Value of Membership

These opportunities are available as a benefit to NORD member organizations
Take advantage of these opportunities by applying for membership today!

Rare Action Network Meetings

The Rare Action Network℠ (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. Register for a RAN event today to get involved in state advocacy and connect with others in the rare disease community!

Utah RAN Networking Breakfast Meeting
When: Monday, June 5, 8:00 a.m. – 11:00 a.m.
Where: Fleming’s Prime Steakhouse and Wine Bar, Salt Lake City

California RAN Advocacy Dinner, Workshop and Lobby Day
When: June 6 – 8
Where: Hyatt Regency Sacramento
*Participation is limited* REGISTER