NORD is the official US sponsor of Rare Disease Day, which occurs on the last day of February each year. On Rare Disease Day, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes and needs of those living with rare diseases.
The day was launched in Europe in 2008 by EURORDIS, and is now observed in more than 65 nations. In the U.S., the coalition working with NORD to support Rare Disease Day includes patient organizations, NIH and other government entities, medical researchers, hospitals and schools, universities and pharmaceutical companies developing treatments for rare diseases.
The next Rare Disease Day is February 29, 2016. Save the date!
We invite all US-based patient organizations partner with us to observe Rare Disease Day here in the United States.
Visit EURORDIS’ Rare Disease Day website to see the global successes from 2015. Visit website >