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Find a Patient Meeting

NORD hosts regional disease-specific patient meetings at locations across the US for certain rare diseases. These events are an opportunity for individuals to meet and connect with other patients, speak with an expert medical professional, and learn about available research and resources. Patients who attend these FREE events gain the encouragement and hope that comes from meeting face-to-face with others affected by the same disease.

Group Photo from the 2015 PNH Meeting in San Antonio, TX

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Types of Meetings