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Patient Stories

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

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Matthew Might, Ph.D. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Awards

Matt Might

Matthew Might, Ph.D.

Ten years ago, Dr. Matthew Might was working in computer science and knew very little about the… Read More

Ellie McGinn – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated… Read More

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

Dr. Frederick Kaplan

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva… Read More

Brandon Hudgins – 2017 Rare Impact Award Honoree

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2017 Honoree
Rare Impact Award

Brandon Hudgins

Brandon Hudgins

For 20 years, Brandon Hudgins has chased his dreams of being an elite athlete and has put the… Read More