NORD works closely with partners across the rare disease community. Membership provides an opportunity to join NORD in meaningful action to improve the lives of all people affected by rare diseases.
Learn about the different types of membership below and join us today!
NORD’s 260 organizational members provide a united force for advocacy, research and medical advancements, policy successes, public awareness and support for the 30 million Americans living with rare diseases. They represent a broad range of disease-specific communities and provide leadership to advance our shared goals. Learn more about the value of membership and how your organization can join.
Members of the Rare Action Network℠ are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings, participate in regional and local events to connect, learn and address the nation’s leading issues, and more!
Running for Rare is a special team made up of passionate and committed individuals seeking to make a meaningful difference for the rare community. The funds raised by the Running for Rare Team will support the NORD/Undiagnosed Diseases Network (UDN) Patient Assistance Program. Each runner is paired with a partner (patient, family, advocate, or other) and builds a relationship with them throughout their training and marathon race. This is the foundation for inspiration as the runners train throughout the year to run 13.1 or 26.2 miles!
Any company engaged in developing orphan products or providing services to the pharmaceutical industry would benefit from membership in the NORD Corporate Council. The Council provides a unique opportunity for start-up and established companies to engage with top experts in the rare disease community in addressing topics of mutual interest. Learn more about the Corporate Council.