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Newsroom and Multimedia

Rare Disease Community News

Rare diseases are in the news more than you would think. With 30 million Americans impacted, there are hundreds of stories being shared to raise awareness. Click here to read a selection of stories featuring initiatives from around the rare disease community and news from NORD.

News from NORD

NORD provides a comprehensive set of news for all rare disease stakeholders.

NORD eNewsletter
A monthly publication sent to over 30,000 subscribers. The publication’s content is diverse and appropriate for all audiences from patients and caregivers to researchers and industry representatives.

Policy Updates
NORD’s policy updates email list is sent rare disease action alerts, opportunities to get involved with advocacy efforts, and updates on important rare disease policy.

NORD Branding

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Hyperlink to downloadable zip file with NORD logos, colors, fonts, etc.

Hyperlink to NORD Brand Guideline


Rare News