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Nov. 15, 2016

TOPIC: Advocacy

November 15th Day of Action: 21st Century Cures

Posted by Jennifer Huron

 

On Tuesday, November 15th, take action to support the 21st Century Cures Act! This vital piece of legislation includes billions of dollars in new funding for critical research at the National Institutes of Health, new funding to accelerate drug approval at the Food and Drug Administration, and several provisions such as the OPEN ACT and Rare Pediatric Disease Priority Review Voucher program that could lead to hundreds of new therapies for rare disease patients. We must unite to ensure that Congress gets our message loud and clear. This is our last chance to make Cures a reality. Please call TODAY!

Please take a minute to phone your legislators and share this action alert on social media!

On Tuesday, November 15th, click here to call on your legislators to support the 21st Century Cures Act!

Sample tweet:

Join @RareDiseases, @EveryLifeOrg, & @GlobalGenes to urge Congress to pass #CuresNow. Patients can’t wait! https://rarediseases.org/november-15th-day-action-21st-century-cures/

2 Responses to “November 15th Day of Action: 21st Century Cures”

  1. Betty Adams says:

    My grandson 34 year old Erik Zimmeht is married and has 3 children. He was diagnosed with NMO about 7 weeks ago. He was blind in one eye and paralyzed from the waist down. This disease is

  2. Donna Day says:

    Please support -it is needed!

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