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Paraoxysmal Nocturnal Hemoglobinuria (PNH) Meetings

2015 Dates and Locations

The National Organization for Rare Disorders invites patients and caregivers/families affected by Paroxysmal Nocturnal Hemoglobinuria (PNH) to join us for our 2015 PNH Tour!  These meetings allow patients and caregivers to meet, learn, share, engage, and connect with each other, expert physicians, the Aplastic Anemia & MDS International Foundation, and NORD.

 

 

May 29-30, 2015
Philadelphia, PA

Friday buffet dinner 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & lunch)
Sonesta Hotel
1800 Market St, Philadelphia, PA 19103

June 6, 2015
Minneapolis, MN

PNH Luncheon Patient Speaker
11:30am-2:30pm
Ocenaire Seafood Room
Nicollet Mall 50 South 6th St, Minneapolis, MN 55402

June 13, 2015
Durham, NC
PNH Luncheon with KOL
11:30am-2:30pm
Ruth’s Chris Steakhouse
S Point Hotel Grp 7007 Fayetteville St, Durham, NC 27713

June 26-27, 2015
Teaneck, NJ
Friday buffet dinner 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & lunch)
Teaneck Marriott at Glenpointe
100 Frank W. Burr, Teaneck, NJ 07666
Register Now

July 24-25, 2015
Mobile, AL
Friday evening buffet dinner 7PM -9PM
Saturday 8:30am-2:30pm (includes breakfast & lunch)
Battle House Renaissance
26 N Royal St, Mobile, AL 36602
Register Now

September 12, 2015
Sacramento, CA
PNH Luncheon Patient Speaker
11:30am-2:30pm
Morton’s Steakhouse
US Bank, 621 Capitol Mall, Sacramento, CA
Register Now

September  18-19, 2015
Chicago, IL
Hilton Garden Inn Downtown
Friday buffet dinner 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & lunch)
10 E. Grand Ave, Chicago, IL 60611
Register Now

September  26, 2015
Omaha, NE

PNH Luncheon Patient Speaker
11:30am-2:30pm
Magnolia Hotel  Omaha
1615 Howard St, Omaha, NE 68102
Register Now

October 3, 2015
Dallas, TX

PNH Lunch with KOL
11:30am-2:30pm
Morton’s Steakhouse
2222 McKinney Ave, Dallas, TX 75201
Register Now

October 16-17, 2015
Anaheim, CA
Friday  evening buffet dinner 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & dinner)
Sheraton Anaheim
900 S Disneyland Dr. Anaheim, CA 92802
Register Now

October 23-24, 2015
San Antonio, TX

Friday evening buffet dinner 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & dinner)
The Westin Riverwalk
420 W. Market St, San Antonio, TX 78205
Register Now

October 30-31, 2015
Chandler, AZ
Friday evening buffet 7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & dinner)
Sheraton Wild Horse Pass Resort & Spa
5594 West Wild Horse Pass Rd, Chandler, AZ 85226
Register Now

November 7, 2015
Detroit,  MI
PNH Luncheon Patient Speaker
11:30am-2:30pm
McCormick & Schmick’s
2850 Coolidge Hwy, Troy, MI 48084
Register Now

November 20-21, 2015
Cleveland, OH
Friday evening buffet  7pm-9pm
Saturday 8:30am-2:30pm (includes breakfast & lunch)

Marriott Downtown at Key Center
Key Tower, Cleveland, OH 44114
Register Now