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Jul. 15, 2015

TOPIC: Research

Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD)

Posted by Jennifer Huron

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to study rare diseases.  The deadline to submit abstracts and letters of intent is July 31.

NORD’s 2015 research grant funding is available for study of:

  • Alveolar Capillary Dysplasia – One (1) grant of up to $50,000, for scientific research studies and/or clinical research studies related to Alveolar Capillary Dysplasia (ACD). See full RFP and abstract proposal template here.
  • Cat Eye Syndrome – One (1) grant of up to $30,000 for a clinical research study related to the diagnosis and/or treatment of Cat Eye Syndrome. See full RFP and abstract proposal template here.
  • Creutzfeldt-Jakob Disease – One (1) grant of up to $40,000 for a clinical research study related to the diagnosis and/or treatment of Creutzfeldt-Jakob disease (CJD). See full RFP and abstract proposal template here.
  • Homocystinuria – One (1) grant of up to $30,000 for a clinical research study related to the diagnosis and/or treatment of Homocystinuria due to Cysathionine Beta-Synthase Deficiency. See full RFP and abstract template here.
  • Lysosomal Storage Diseases – One (1) grant of up to $30,000 for a clinical research study related to the diagnosis and/or treatment of Lysosomal Storage Diseases. See full RFP and abstract template here.
  • Pseudomyxoma Peritonei – Two (2) grants of up to $50,000 for a clinical research study related to the diagnosis and/or treatment of Pseudomyxoma Peritonei (PMP). See full RFP and abstract template here.

These grants are made possible by donations to NORD.  In some cases, the grants are co-sponsored by NORD and disease-specific patient organizations. NORD encourages all U.S. and international researchers interested in studying these diseases to consider applying.

The objective of the NORD Research Grant Program is to encourage meritorious scientific and clinical studies that will ultimately lead to new diagnostics, treatments, and/or cures for rare (also called “orphan”) diseases or disorders.  The studies funded with NORD research grants provide preliminary data on drugs, devices or medical foods that researchers may then use to attract funding from government or industry sponsors to pursue further clinical studies.

Two of NORD’s previous research grants have resulted in FDA-approved orphan products to treat rare diseases.

A rare disease is defined as one that affects fewer than 200,000 people in the U.S.  There are 7,000 rare diseases that combined affect 30 million Americans, or 1 in every 10 people.  Two-thirds of rare disease patients are children.  The majority of rare diseases have no treatment.

For more information about NORD’s research grant program and  rare disease research funding opportunities, visit: http://rarediseases.org/research.

 

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About National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD), established in 1983, is the leading, independent nonprofit organization representing all patients and families affected by rare diseases in the U.S.  NORD is committed to the identification, treatment and cure of all 7,000 rare diseases, 95 percent of which have no treatment, and affect 30 million Americans, or 1 in every 10 people.  NORD provides programs of advocacy, education, research and patient/family services to improve the lives of all people living with rare diseases. NORD represents more than 230 disease-specific member organizations and partners with many other organizations in specific causes of importance to the rare disease patient community. Join NORD at www.rarediseases.org/ and on Twitter at @RareDiseases.

 

Contact:

Jennifer Huron, jhuron@rarediseases.org, 203.304.7258

 

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