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Patients, caregivers, advocates, doctors, researchers, legislators, regulators, and public figures. People who make a positive impact on the rare disease community go above and beyond, overcoming certain obstacles, to help make meaningful change in the lives of others. They are making a rare impact.

NORD requested nominations of individuals that have made a positive impact on the rare disease community in 2016. Eligible Nominees included patients, caregivers, advocates, physicians, medical experts, researchers, media, educators, legislators, regulators, and others and their efforts to raise awareness and make a difference through education, media/social media campaigns, policy work, and community-building. Special value was placed on the Nominees that had made an impact on all rare diseases and rare diseases as a whole.







Nominations for the 2017 Rare Impact Awards are closed.
Thank you for your submissions.

"We had a wonderful time. We were inspired to continue our advocacy and research efforts on behalf of Batten Disease and NORD."

-Drew's Hope, Kate Ferrandino

"Amazing people and so many unbelievable stories of strength and triumph! I am thrilled to have been a part of it."

-Patient Advocate, Savannah Hollis

"Thank you so much! It was an honor to be amongst so many incredible people."

-CureDuchenne, Debra Miller

"The event was a life changing experience for me. Thank you again for giving me this honor. "

-Patient Advocate, Noah Victoria