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Save the Date: Rare Diseases and Orphan Products Breakthrough Summit
October 16-17, 2017 in Washington, D.C.

As major changes to the nation’s healthcare system are debated, the NORD Summit, which historically features more than 20 speakers from FDA and more than 80 thought leaders from the patient community and industry, will provide a unique opportunity to hear from the experts and join the conversation on issues of unprecedented importance.

This event is your opportunity to:

  • Meet and collaborate with experts from FDA, NIH, and the orphan product industry
  • Be part of the conversation as we work together to drive improvement and progress
  • Learn about groundbreaking innovation and emerging research

Why You Should Attend

  • Over 80 speakers
  • 6 Breakout tracks
  • Groundbreaking keynotes
  • Meaningful patient participation
  • Expansive poster session highlighting the brightest minds in rare disease research, innovation, awareness, and education

poster-abstracts2017 Call for Posters

Academics, researchers, industry, government agencies, health care professionals, patient organizations and any other interested parties that have conducted rare disease or orphan product research studies or public health projects are invited to submit a poster abstract to the NORD Summit. The overall theme of the poster session is “Life-Transforming Treatments.” Suggested specific topic areas within that over-arching theme that the planning committee would like to address include: innovative research, medical education advancement, patient community building, and other topics.

Download More Details Here 

Deadline: Friday, August 18
Poster abstracts may be submitted via email to

"Inspiring and Informative. Brought to the realization that though I may feel my ‘disease’ is the only one – there are many who have their own struggles."

-Research Nurse III, Cincinatti Children’s Hospital Medical Center

"Great event! Thank you!"

-ECD Global Alliance

"The NORD Summit was the singular opportunity that I have had to interact and network with others from patient orgs dealing with rare diseases. I learned as much in the networking breaks as I learned in the session. I leave with new knowledge I don’t think I could have gained anywhere else."

-Director of Research, Hemophilia Federation of America

"Legislative panel was great!"

"Physician panel were all well educated and engaged – did a great job of answering questions. Moderator was excellent."

"This has been a successful meeting between my spiritual and emotional dedication to fellow RD patients and the scientific & regulatory experts with their valuable lot of tools to help us navigate the confusing aspects of being a good advocate."

-Director of Support Groups, CSRF

"Fantastic meeting of all the relevant stakeholders to bringing treatments to patients."

-Senior Director , Medical Affairs, Cytokinetics, Inc.

"Incredibly valuable meeting to connect stakeholders, share information and provide inspiration and motivation."


"Great conference! I am excited to get back to my organization and work on some projects that are inspired by the information shared."

-President & CEO, EDSers United

""For both ATOF and myself, attendance to last year's summit changed our nonprofit and put us years ahead in research and collaborations with our medical partners. It is imperative that we are able to participate again this year. We are saving lives because of you!""

-A Twist of Fate

Key Contacts

General Inquiries

Sponsorship Inquiries
Derek Gavin