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Archives for: August 3rd, 2016

Guest Blog: Tour For A Cure

Written by Jennifer Huron on August 3, 2016
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 By Alison Rockett Frase, Guest Blogger

In 1995 our son, Joshua, was born with a very rare muscle disorder called Myotubular Myopathy; an early death was imminent for our first-born. Through the despair and dismay, a vision of faith and hope was birthed through the Joshua Frase Foundation. Our vision seemed… Read More

Joshua Frase Foundation

Written by Christina Jensen on December 1, 2015
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The Joshua Frase Foundation (JFF) is a non-profit organization whose mission is to support ongoing medical research in hopes of finding a cure for myotubular myopathy. JFF also provides monetary and emotional support to families who are affected by congenital myopathies. Myotubular myopathy is a rare muscle-wasting disorder that occurs… Read More

The Will to Live and the Strength for a Cure

Written by Barbara Hollister on August 18, 2014
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The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened muscles could not function normally which affected his… Read More