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Archives for: September 8th, 2015

Rare Disease Artists’ Work Traveling Globe to Raise Awareness

Written by Jennifer Huron on September 8, 2015
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cystinosisThe Cystinosis Research Network (CRN), a 501(c)(3) charitable organization and NORD member, created the first-ever “Dream, Achieve, Inspire” art exhibit prepared entirely by patients with cystinosis, a rare, genetic-metabolic disease. Paintings, poems, sculptures, dance, and photography from 107 individuals with cystinosis covering 30 countries came… Read More