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Archives for: June 28th, 2016

NORD Publishes Physician Guide to Mitochondrial Myopathies

Written by Jennifer Huron on June 28, 2016
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As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free online to medical professionals around the world.

The NORD Physician Guide was written by two widely acknowledged experts on… Read More

Giving Spotlight: Paula Mann Honors Son, Garrett, with Donation to NORD

Written by Jennifer Huron on August 26, 2015
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 “I really appreciate all that NORD does for those living and managing their lives with rare disorders.” -Paula Mann

Paula Mann is a mother of a boy, Garrett, born in 2008 with Mitochondrial Disease, a rare disease that can be present at birth or come on later in life…. Read More