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Archives for: June 28th, 2016

NORD Publishes Physician Guide to Mitochondrial Myopathies

Written by Jennifer Huron on June 28, 2016
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As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free online to medical professionals around the world.

The NORD Physician Guide was written by two widely acknowledged experts on… Read More

They Said things like, “She’ll Grow Out of It”

Written by Emily Fishman on October 28, 2015
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Abigail MacCurtain was born a happy and healthy baby girl in the winter of 2011, despite being born at 35 weeks due to Premature Rupture of Membranes (PROM). The only notable problems were a large birthmark on her head and a failed Auditory Brainstem Response (ABR) Test, but medical professionals… Read More